Research and also experience in patient advocacy and activism show that experts and patients, and their organisations are an important part of medicines development. They can only achieve effective and sustainable results in advocacy if their knowledge about their disease areas and political environment is sound and scientifically founded.
It is essential that experts and patients can clearly see the processes and methods by which medicines are developed and brought to the market to understand where and how they can make a meaningful impact, and how they can influence the process to make sure that patients’ interests and viewpoints are duly represented.
Eupati provides a useful toolbox of resources to complement the tools already available to patient advocates and organisations.
The Toolbox is not medicine- or disease-specific, but having said that, the information here should be applicable to the majority of diseases and/or medicines you may be concerned with.